For the time being, we will summarize the progress of the project in a newsletter in German, French and English in a periodic newsletter. In addition, we dedicate a part of each issue to a specific project-related topic. As a new newsletter recipient, you can register on our contact page.


"Our Voices - Our Life" will give a face to the community of DM-affected individuals and their family members. For this reason, we deliberately refrain from reports from the field of research.

Newsletter 2 (December 2018)

  1. Andreas' impressions from the Annual DM-Conference in Hohenroda/Germany

  2. Ann's story about taking care of her DM-affected family.

You might like to compare Ann's experiences to the family story of Odile from France and to Brigitte from Germany.

Newsletter 1 (September 2018)

  1. How do I successfully write my own story? Mike, our contributor from Florida / USA knows the answer and explains you a possible procedure step by step

  2. Bernhard was an avid mountaineer. Learn how he kept his enthusiasm, but especially his satisfaction despite the limitations of DM2, by reading his story

Bildschirmfoto 2018-12-29 um
Bildschirmfoto 2018-12-29 um

Newsletter 3 (April 2019)

  1. Florence: No progression of DM-symptoms

  2. Christine and Jean-Claude: How to get involved in France

  3. Olivier: Fundraising in France


Our next newsletter will appear in September 2019​

Bildschirmfoto 2019-04-30 um

Andreas Herzog & Erich Maurer,

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